We had our 6 month follow up with CHOP in September. No issues to report:) The clinic pediatrician was concerned about Brent's weight because he should be on the leaner side to make it easier for his muscles. Brent has a different agenda however. He likes to eat but he's not eating anymore than any other kid. He's on prescription formula, Elecare, and has cereal, veggies and fruit once a day. I recently had him try organic puffs-didn't work out for him. He gagged like I just fed him garbage. It was hysterical. Today he tried cheese puffs (like doodles). Those he liked.
Early Intervention is going well. Mr. Brent doesn't like belly time mainly because he'd rather we did all the work for him. He had one day when he rolled over but he hasn't shown much interest in it since. He can spin himself in a circle though and get himself from one end of the crib to the other when he sleeps. (Yes, he's in his big crib now. He moved at 6 months because he was touching both ends when he slept so I figured it was time. I don't think I got any sleep the first couple nights.) He's delayed a bit but pretty much at his corrected age (6 weeks) so we try not to worry. He's working very hard at sitting up. He still needs help but is always trying to sit up by himself. He's got laughing down and has now starting this fake coughing for attention. He's so smart...and a bit spoiled. His PT says it's not spoiled, it's indulged :)
Brent is just doing so well it's weird to think back on our journey. It's almost a year since we got the diagnosis and since we had the surgery. It feels like a lifetime ago. There are some times when I miss Philly and the Ronald McDonald House because it's where it all began. That's where I watched my belly grow and where this crazy little man began his life. Brian and I got married this past weekend and even though Brent was supposed to be a "honeymoon baby" I am so glad he was a part of everything (even though he passed out in his wagon :) No matter how many plans or lists I make, the unexpected seem to make everything fall into place.
My little Bubba, aka Monkey Face, aka Chunky Love, aka Chubby Butt
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